No place like home

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There is no place like home.

The last week has been incredible. I can’t believe I’m walking around with brain tumors. It’s a very scary thought. I keep wondering when or if I’m going to have a seizure. What will it be like? Will I be alone when I have it? Will Brooklyn see it and will it will scare her? What do I do if I have one?

It was so good to see my kids today. My parents kept the babies for one more night – I am exhausted – and Brooklyn is home with us. We had a good time tonight. She wanted to celebrate August so we did arts and crafts to celebrate August. Why not, right?

Dusty and I voted today (go Bill!) and yes, I got a sticker. I’m wearing it proudly.

My main side effect from radiation is EXTREME EXHAUSTION. I’m not nearly as sick as I was with chemo (PRAISE GOD!). I just sleep or want to sleep a lot. I also have a lot of jaw pain and swelling. My lymph nodes under my ear lobes are swollen, hard and sore. It’s very uncomfortable. Thankfully I see Dr. Edlund (radiation oncologist) tomorrow so he can tell me if that’s a normal side effect.

I don’t have my permanent schedule for radiation so that’s why I haven’t posted a driving schedule. Hopefully I will know more tomorrow. Thank you to everyone who has offered to drive me.

Please pray for:

The tumors to miraculously disappear.
Continued smooth transition into home (away from the comfort of being at the hospital).
A positive reaction to the radiation.
Few side effects from the radiation (or at least that they don’t get worse – I can deal with this).
Dusty and the kids. My heart aches for Dusty as he, once again, has to go back into cancer mode less than a year later. He’s doing awesome and is great with the kids, but this is not what we expected.
Our parents. Please pray for strength, support and encouragement for them.
Max and Samantha are still too young to get what’s going on. They were having so much fun with my parents today which was a huge relief to see. Running around and laughing. The best sounds on earth.