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Our young family battling stage IV breast cancer one day at a time
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Here I Go Again

posted by:
Lindy

I went to chemo yesterday and met with Dr. Vander Woude.  Here are a few pieces of great news! 

  • My tumor continues to shrink. 
  • This is my last round of Adriamycin and Cytoxan (A/C).
  • Dr. VanderWoude is encouraged by how well my body is reacting to the chemo.
  • My port was accessed on the first try. 

My next round of chemo, Taxol, will begin in two weeks.  Dr. VanderWoude assured me that it won’t be so bad.  Just different symptoms.  Lots of muscle and bone aches and the fatigue will still be present.  They will give me steroids to help with that.  The nausea shouldn’t be a problem (yeah!). 

Once Taxol is complete, they need to wait for my blood counts to elevate which takes a couple weeks and then I’ll have surgery.  So we’re looking at early October for the mastectomy to occur.  We still don’t know if it will be a double mastectomy or a single one.  We are waiting for insurance to approve the genetic gene blood test.  If I test positive for it, I’ll probably get a double mastectomy.  The fact that surgery will happen in October is a bummer for me because Max and Samantha’s birthday are on October 15 and Brooklyn’s is October 23.  If you know me, I like to plan parties.  It will be hard to do that and participate fully if I’m recovering from surgery.  Hopefully we’ll figure something out.  🙂

I have been receiving cards from you every day.  It blows me away that after all these months I still receive cards in the mail.  It’s awesome.  I had one day where I didn’t get a card and I thought “okay they’re bound to stop at some point.  No biggie”.  The following day I got another card and they’ve been coming ever since.  So thank you for the cards.  I have quite a collection going.  I even reread them when I need some encouragement or laughs.

Dusty and I took a picture of us together with our bald heads.  We laughed so hard we cried.  It’s quite the picture.  Someday, if I’m brave enough, I will post it for all you to get a laugh at as well. 

Today I go in for my Neulasta shot (this raises my white blood cells to fight off infection) and fluids.  Tomorrow is more fluids and anti nausea.  Monday is more fluids and anti nausea. 

Thank you for your prayers. 

28 Responses to “Here I Go Again”

  1. Ben VerBeek says:

    Aunt Lindy,

    My family and I are so happy to hear about the great news! We think and pray for your family daily. Stay strong!!

    Your Nephew,

    Ben

  2. Carrie Johnson says:

    Hey Lindy,

    I am so happy to hear things are going a little better! I have you and your family in my thoughts and prayers every day! I love how you are journaling this. Know that god is there holding your hand and we are all praying hard for you to recover! If you ever need anything please let me know.

    My thoughts and prayers are with you all daily! Keep up your strength and good humor. I can just picture you both laughing until you cried; bald and beautiful!

  3. Holly says:

    I’m so encouraged to see you posted on one of your awful days! You are such an encourager to others on how you are handling this…God is surely present with you. We think of you all the time and are praying…..

  4. Denise says:

    It was nice to see you last night…there will be more cookies coming your way 🙂 Praying for you like crazy!

  5. Kim Lubbers says:

    So great to read your post and see such encouraging news!! Yeah God:) We will continue to pray pray pray!!

  6. Anonymous says:

    Lindy … you are so amazing! Thanks for taking time to post, even when you’re feeling at your worst. We praise God for answered prayers and for His healing work that is happening in your body! May He continue to fill you with His pefect peace. With love in Him,
    Amy & Brnet

  7. Aunt Kathy says:

    Hi Lindy;
    Thanks so much for letting us into your world as difficult as that may be at times.
    I appreciate your taking the time and energy to explain to us the details of what you must go through, it helps me pray specifically for your needs, and feel closer to you and your family. If needed I’m sure with all these supporters we can help pull off some special birthday parties for the twins and Brooke-no worries!

  8. kathy says:

    I love great news! Thanks for sharing it. I’m so glad you won’t have to endure another A/C treatment.

  9. Rachel Baird says:

    Hey Lindy ~ I miss you! Thank goodness the worst of the chemo is over — I pray the next four rounds really are easier on you. The pictures Brooklyn took are awesome. She’s pretty talented for a 5 year old! And you look AMAZING! Your smile lights up a room.

  10. Michelle says:

    Hi Lindy, Thanks for the updates, with all that you have endured, it’s such great news to hear the tumor is shrinking, your body is handling, and the worst chemo is behind you. Your an amazing woman and your faith is an inspiration to all of us. Praying your weekend will be better than expected.

  11. Dad Ver Beek says:

    Hi Lindy…. Praise God from whom all Blessings Flow. Love Ya. Mom and Dad

  12. Marlys Geerlings says:

    We praise God with you for the good report. Even in times of great suffering, it is good that you can see the blessings. We will continue to pray for you and all your loved ones.

  13. Dani says:

    I am so glad to hear your great news that is wonderful!! Hang in there.

  14. Rebecca Reed-Lopez says:

    Hey Lindy! Kamrin’s latest saying after tonights prayer for you. “Mom, Lindy has had my angel for like 100 days now, is she better yet?” I repsonsed “Well babe, your angel is helping but she’ll need her for alittle while longer”. Kamrin than made me laugh out loud when she said “Well I hope Lindy doesn’t wear flip flops because those will hurt her toes like they do mine and I don’t want her feet to hurt her”. I told her I would pass on the tip to you. Hope it brings a smile to you as it did to me.

  15. Liz TenCate says:

    Hey Lindy, Praise be to God for all your good news! We will continue to pray that your next round of chemo goes much better and you don’t have so much nausea! I love your posts and your good humor! Stay strong and know we pray for you daily!

    Lots of Love,
    Liz TenCate

  16. Jana Ver Beek says:

    Last week in church we sang a song that had a chorus that I thought was something you could hang on to. It goes like this…
    “Oh no, You never let go,
    every high and every low,
    Oh no, You never let go,
    Through the calm and through the storm,
    Oh no, You never let go,
    Lord, You never let go of me.”
    My prayer is that you can feel our Lord’s loving and healing arms wrapped tightly around you.
    Love, Jana

  17. Rachel Baird says:

    Hey again ~ I’ve been thinking about you and praying for you today, knowing that the Sunday following chemo is the worst. I pray tomorrow brings you relief!

  18. jim and kath terp says:

    Hi Lindy
    we continue to pray for you, May God give you the strength you need.

  19. I did have cancer in the same breast 6 yrs ago… and had a lumpectomy. About a year ago, I got a rash.. really bad all over my body .. of undetermined origin, come to find out that is a side effect of cancer for some people. The new cancer is embedded in the scar tissue from the lumpectomy so it could not be seen by Mammography (had a clear one in Marcy) or ultrasound… the rash started on my legs and worked its way up.. when it got to that breast, the skin changed and they became suspicious so I did a biopsy… and there it was.
    I can tell you how the treatment affects me, but it affects everyone differently. I do treatments every 3 weeks on Thursday…. by Saturday I start feeling sore…Sunday and Monday ..like I have been beat up. Tuesaday thru Thursday, I just feel really bloated.. with Thursday being diarrhea. On those days, over the counter medicine for “gas” and Imodium. Then on Friday, I feel wonderful.. and do until the whole cycle starts again. It isn’t really bad though, I continue with my routine. I did my big chemo last Thursday (7/16).. I do Herceptin every Thursday because I was Her2 positive. Let me know when you are there, I would love to say “hi” .. We are going to be fine.. this is a small space of time where we have to deal … and show God’s people how you go through rough times… there is always a purpose.

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