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Our young family battling stage IV breast cancer one day at a time
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Home Again

posted by:
Lindy

 Duke University Clinic Building

I’m happy to say our trip to Duke was successful.  We met with Dr. Blackwell who specializes in breast cancer and she not only agreed with Mayo in treating my brain with Gamma Knife, but also suggested treating me with either an oral chemo pill that can pass the blood brain barrier or a clinical trial or both.  She said my brain is one thing that we know needs treatment, but she’s also concerned about the rest of me.  She said if one cancer cell could survive all my prior treatments and was smart enough to take up residence in my brain, then she wants to make sure there are no other smart cells to take up residence from my neck down.  She would follow me very aggressively seeing me every three weeks and having scans run every nine weeks. 

Duke Medical

She gave a lot of great suggestions and advice.  She also suggested that I begin working with a major cancer center in Michigan, such as U of M, and with a doctor who specializes in breast cancer and is on top of all the clinical trials.  She said it didn’t matter where I get my brain tumor zapped (Mayo or Duke), but that being a 33-year-old YOUNG woman I need to work with a major cancer center. 

I made the appointment with Mayo to have the Gamma Knife surgery next Wednesday.  I’m nervous, scared and excited.  Thank you to the Pugh’s for flying us to Minnesota for this procedure.

Right now I am so sick of cancer.  I’m sick of talking about.  Reading about it.  Hearing about it.  Learning about it.  Remembering I have it.  My life has been consumed by cancer lately and I’m sick of it.  So sorry this isn’t a really great posting, but I’m trying to rebalance my life so that cancer isn’t the center of it. 

Thank you to everyone who helped out with the kids while we were gone.  It’s hard to be away from them and it’s hard to think I’m leaving again.  We couldn’t do this without everyone’s help.  Thank you!

 

53 Responses to “Home Again”

  1. Marian says:

    Welcome back home to you Lindy. I am so happy to hear that you are back home and that God has given you a definate clear answer about your next step. Both hospitals are on the same page. That is fantastic. I will continue to pray for more clear direction about how to treat and kill every cancer cell in your body in the future. I will also be praying that you get that much needed time for you and your family. I totally understand your frustration with cancer overtaking your life. May you be blessed in every moment in this next week with peace as you spend this time with the kids. Lindy, God is our healer and we believe he can and will.

  2. holly says:

    Lindy…so happy to hear that each hospital is agreeing on treatment….that has to bring some relief and hope for this surgery. We have faith in a wonderful God who can heal through radiation, through miraculous healing, through gamma knife surgery and through prayer….I believe that He is using all these things together to heal you and give you the long life you desire. We pray for peace in the details, comfort for your tired soul and rest for your weary family…..May you have love, laughter in the few days before this and when you return may there be rejoicing at what our great Creator has done for you. I believe it and I am believing with many many people for your healing. Thank you for updating us so we can pray.

  3. Tiffany Timmer says:

    Lindy,
    I am so glad to hear you made it home safely, and that your trip went well. I am glad that Duke agrees with Mayo, and that you will get to have the Gamma Surgery! We will be praying for a safe flight down there, and a safe surgery!! You can beat this!! 🙂
    Love you,
    Tiffany

  4. Megan Van Kampen says:

    Lindy,
    thank you so much for the updates even though you’re sick of talking about it. I check it everyday wondering how you guys are doing. So happy to hear the visit at Duke went well and you have a clearer path for treatment. I will continue to lift you up in my prayers. I’m glad you are taking time to just enjoy life and family. God is in control:)

  5. Amy Sluiter says:

    So thankful for a good report. We continue to pray for healing, for peace, for strength. “The Lord himself will go before you. He will be with you; he will not leave you or forget you.” Deuteronomy 31:8. Praying that God invades your life with His Presence, His rest, His joy, and His Hope. Lots of love to you guys! Brent & Amy

  6. Kim says:

    Thanks for the update Lindy!! What a huge relief to know that the doctors are in agreement! Another step you can put behind you!! Praying your nerves will be calmed about surgery and that you can enjoy some good family time before you have to leave again!! Praying ALWAYS:) Love Ryan and Kim

  7. christy says:

    i feel like you have had such great confirmation and am so excited to see what God is going to do next….

  8. Barb Dannenberg says:

    I’m so thankful that the two hospitals are in agreement – that should give you a great sense of “doing the right thing” – good for you to do your research so you can have that peace of mind!

    We’ll pray for all the details to fall in place and for calmness for you as you wait until next week.

    We’re continuing to pray for COMPLETE healing for you!

  9. Jana Ver Beek says:

    Thanking God that a plan is in place. I will pray for a calmness to settle over you, Dusty and our parents, knowing that God has you wrapped tightly in His HEALING arms!!!!

  10. Sara Willett says:

    Hi Lindy,
    I sent you a note a few weeks ago but wanted to re-iterate that you are welcome to stay at our home and possibly borrow a car anytime you need to come to Mayo. We’re college friends of the Geurinks and live in Rochester, MN now. We’d be happy to give you the keys and you can come and go as you please. And don’t feel like you have to socialize with us if you stay by our house … we completely understand if you just want to use us for a free bed as I’m sure you need your down time too! Or let us know if you just want tips on good local restaurants or hotel discounts. We’d be happy to help any way we can.

  11. Tina Amaya says:

    Lindy Lou – This is great news! We will continue to pray for health, and total healing for you in everything. God is so good and He is watching over you! Tina

  12. Craig and Donna says:

    HI Lindy! I am so happy to hear the doctors are in agreement and that there is more hopeful, encouraging news! I am holding you so tight in my heart that I feel like I might burst! It just feels like God is going to do this huge thing so that all may know how big, how strong and how mighty our God is! He did it with Sam! Keep going! Keep your eye on the prize! OK, so I’m listening to a ‘Rocky’ song right now, The Eye of the Tiger!

  13. Aunt Carole says:

    Dear Lindy,
    Welcome home. There really is no place like home, is there. You must feel like the cancer has hijacked your life and is holding you captive. Fight hard, Lindy, and don’t let your captor get the upper hand. Your captor/cancer is still under God’s all-powerful control, and God has the ultimate plan – He will win this battle for you! Let God’s love, the love of family, the love of friends, and the love of strangers who are praying for you keep you in peace – peace that passes understanding. As I heard on the cancer special last week: “We know what can happen when enough of us stand together: ANYTHING!” Together we stand with you in Christ! Love & Prayers…

  14. Christa Meeuwsen says:

    Lindy,
    So glad that you have been led down the same path by two well known and experienced health facilities. Will pray for all the big and little details to fall into place for you in the coming weeks and that NO cancer cell can survive the procedure you are about to have. Please keep posting details so we can pray accordingly.

  15. Cara Larsen says:

    Keep up the fight Lindy! Dr. Blackwell sounds very intuitive and like the kind of person you want fighting with you. We will pray for peace, safe travels, and complete success with the Gamma Knife procedure!
    Blessings to you and your precious family!

  16. Praying says:

    “For I am the Lord your God, who takes hold of your right hand and says to you do not fear, I will help you.” Isaiah 41:13

  17. Karen Kamphuis says:

    So glad to hear that they have given you some Hope!! Glad that both places agree on a treatment, I’m sure that it makes you feel a lot better about that!
    Praying that your procedure goes well and that you will find Balance to your life, just remember that cancer IS NOT the center of your life, GOD IS! and He is in CONTROL!

  18. Dad Ver Beek says:

    Dear beautiful Lindy
    You are well on your way to becoming our families next miracle. When I am with Samantha I feel God’s presence near me. I’ll probably feel the same way about you. I thank God every day for the healing He did for Sam. I’m going the same for you. Love you so much !!! Dad

  19. julie meyaard says:

    Lindy,
    Keep believing…and we will all keep praying.
    Love you guys.

  20. Betsi says:

    Lindy,
    I read a book recently called “The Art of Racing in the Rain”. It was a really good book written from a dog’s perspective about his owner’s life. The owner was a race car driver who was really good at driving in the rain. His secret for success for this was that you go where your eyes are. In other words, look where you want to be (healthy, whole, with your family and praising God for his miracles) and that’s where you’ll be. We’re praying for you girl!

  21. Susie eakley says:

    Lindy,
    You have been in our prayes..Keep up the fight!!

    Susie

  22. Jennifer Nagelkerke says:

    Lindy and family,

    We are on our knees for you –

    Love, Mike, Jennifer, Anna and Kate

    p.s. Anna tells Brooklyn hello!

  23. Deb Van Heck says:

    Dusty and Lindy,

    It’s great to hear that all these doctors you are meeting with are trying to give you the best advice and direction you need. I feel your frustration and I pray that God will relieve that from you. As you are at Mayo this week, please know that so many people will be praying extra hard for YOU because so many people love you and your family. We pray that you will feel His presense this week while you are there. Also, just wanted to let you know that is was so much fun seeing Brooklyn at church on Wednesday night. Her question of the night…”What is going to be the most fun thing we do tonight?”…I told her, “Everything!!”

    We love you all and rely on God for EVERYTHING!!

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