29. January 2010 by Lindy.

For the past seven weeks my life has been the same thing from 11:45 until 12:30. 

I would pack up the kids, bring them to my parent’s house and go to radiation.

This is LAROC (Lakeshore Area Radiation Oncology Center).  It’s the building where I get radiation done.  There are no bad smells in the building.  It’s not “clinical”.  It’s very zen.  There are water features and soothing music throughout the building.  Oh and carpet.  Not hard vinyl tile floor like a hospital. 

Everyday I would walk in the sliding doors, proceed through the regular waiting room and go to the special waiting room.  I named it special because it’s where people like me wait to get radiated (or what Dusty likes to call radiant).  Then one of the radiation techs calls me back to a room that is built like a vault.  It has a thick steel door and the walls are 4-6′ thick. 

Here are the wonderful radiation techs who I see every day.  Marie, Karen, A GVSU Student and Linda.  Bob works there too, but he must have been at lunch.  My appointments are always over their lunch shift. 

This is the table that I lay on to have radiation.  My arms go in the red stirrups and the triangular pillow goes under my knees.

Once I’m on the table, the techs get me situated perfectly so I don’t get accidentally radiated in other body parts.  When I’m right where they want me, I cannot move an inch.  They leave me alone in the room and go to their hub.  Their hub has four computer screens and a closed circuit television to watch me on.  Once they’re ready, the machine moves around me and I get radiated in five different areas.

Then they send me on my merry way.  Although today they gave me a certificate and a coffee mug. 

Today was my last day of all cancer treatments!  No more chemo.  No more radiation.  Nothing.  I feel like I should run through one of those finish line tapes that you see at the end of a race.  If I see one today I’m going to run through it pumping my fists in the air.  It feels awesome to be done.  Absolutely wonderful.  I can’t put into words how thankful I am to be done with treatment and most of all to be cancer free!

From this point forward I have routine check ups with my oncologist every three months where they check my blood and make sure my numbers are good.  I’ll keep my blog updated when I get any news, but from now on, I won’t be writing much.  

So many of you held my hand through my treatments and I will be forever thankful for you.  I couldn’t have done it without the healing hand and grace of our great savior and God or without his wonderful people.  Thank you for walking with us on our journey.  God Bless.

“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.  Then you will call upon me and come and pray to me, and I will listen to you.  You will seek me and find me when you seek me with all your heart.” 

-Jeremiah 11

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26. January 2010 by Lindy.

I can hardly believe I’m almost done with all cancer treatments!  Thank God!  I will have my last radiation treatment on Friday.  I am so happy, so relieved and so excited.  I should celebrate.  Hmmmm…what to do.

I saw Dr. Edlund today (radiation oncologist) and he said my skin reaction is appropriate and that I shouldn’t have any problems from here.  Since Tuesdays are the day I see the doctor, they gave me discharge instructions.  I couldn’t believe I was being discharged.  Another surreal feeling.  The good news is that the fatigue should last for only two weeks after my last radiation treatment.  I can’t wait to have full energy back.  Maybe I’ll run a marathon or something…

Dusty and I went to Chicago to meet with Dr. Song (reconstructive plastic surgeon) yesterday.  I was presented with three options here in Holland - implants, lat flap and TRAM flap.  Plastic surgeons don’t like the idea of doing just implants when skin has been radiated because the results won’t look good.  The other two options take my muscles and I wasn’t happy about that.  Dr. Song performs the DIEP flap which we thought was newer, but upon talking with his nurse they’ve been doing it for 16 years!  I felt like a hill billy asking about that new fangled operation where they use electronical gadgets to reconnect my blood vessels.  I’m glad we made the small trip because Dr. Song gave me more options than I thought possible.  All of which don’t include taking muscles.  His final recommendation is probably what I’ll go with, but there is one other option that I want to look into as well.  The surgery can’t happen for six more months.  I have time to think about it.

So that’s it in a nutshell.  I could write a small novel about my reconstructive options, but I’ll spare you. 

Have a great day! 

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20. January 2010 by Lindy.

Thank you for the birthday well wishes, cards and emails.  I had a great birthday.  Brooklyn was more excited for my birthday than I was.  She called me “birthday girl” all day and before she left for school in the morning she said I could wear one of her crowns that night.  She had a hard time understanding why I wasn’t having a party.  It’s hard to explain to a 6-year-old that when you grow up you don’t always have your friends over and play games for your birthday.  We had cake though and that’s party enough for me. 

I have six more radiation treatments to go!  Yahoo!  My skin is now purplish/reddish and peeling.  It looks disgusting and hurts worse than last week, but I can endure it.  I only have 1 1/2 weeks left!

Dusty and I are going to Chicago next week to meet with Dr. Song.  He’s at the University of Chicago and he does the latest reconstruction procedure called DIEP.  I’m researching that this week and arming myself with an arsenal of questions for him. 

The kids are great.  Max and Samantha are walking everywhere.  They’re so cute when they walk around the room together.  They’re a little unsteady on their feet so when they walk together they look like a little old couple.  It’s the best. 

Let me tell you something you’ve all heard before:  Don’t take anything for granted.  Even the smallest things.  For instance, hugs from your loved ones or holding your little ones.  Through chemo (bone pain) and now radiation (skin pain) I’ve learned that even a simple hug is wonderful and shouldn’t be taken for granted.  Other things not to take for granted:

Eating, hair on your head, eyelashes, driving, reading, thought processing, memory, clapping, going for walks, running, riding a bike, playing with your kids, health, cooking and the list could go on and on… 

I don’t take any of it for granted.   

Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance.  James 1:2-3

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14. January 2010 by Lindy.

Today is my 33rd birthday.  Yea!  I usually don’t care about my birthdays too much, but this birthday is a little sweeter than most.  I’m so happy that I’m doing as well as I am.  Thank you for your prayers.  God has heard them all and has blessed me with renewed health and strength.  Thank you! 

One of the good things that came from my cancer is that I’ve been in contact with so many people who I haven’t seen or spoken with in years!  It has been so fun to catch up with everyone. 

I’ve been rocking my new short hair do and have had many compliments (thank you).  I washed my wigs and put them in storage and  I gave my head scarves to another girl (Hi Amy) going through cancer.  It felt so good to get rid of those things. 

I think I’m down to ten more radiation treatments.  The end is definitely in sight.  I can’t wait to be finished with everything and give my skin time to heal. 

Have a great day everyone! 

God Bless

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5. January 2010 by Lindy.

As Dr. Edlund said today, I’m over the hump.  I have 16 more treatments to go.  That’s not bad.  The skin that’s being treated looks tanned/burnt with little black dots all over it and it’s in a perfect square formation with a little blotch on my right shoulder.  It doesn’t hurt that bad, but the latest development is itching.  That’s normal though and not a big deal. I compare everything to chemo.  From a paper cut, to a cold, to radiation.  I compare it all to chemo and if it’s not as bad as that, then I can deal with it.  So the radiation side effects, compared to chemo, are a walk in the park. 

It’s strange to be able to visually see where I’m being radiated.  It really is a large area.  It reminds me how big the tumor was and how serious the cancer was.  I love saying “was”.  I don’t have cancer anymore!   

I’m done with physical therapy.  I have exercises I need to do daily or I feel the muscle tightening up and I lose range of motion on my right side.  I’m glad to be done with that.  It’s one less appointment to go to. 

My hair is growing back and I’m just about ready to rock my short hair do.  I’ve been wearing my wigs yet because I’m not a short hair kind of girl, but I’m ready to have nothing on my head. 

The kids and Dusty are doing great.  Samantha is walking all over the place and Max is close on her heels, but he still reverts to crawling when he’s in a hurry.  Brooklyn is doing great and loves school.  Dusty is doing well and is having fun  updating websites that he created and maintains - Haven church and Compassionate Heart. 

I would also like to say I’m glad 2009 is gone.  Behind us.  In the past.  Never to return again.  Bring on 2010! 

Thank you for your prayers and support.  They mean so much to us.  It’s so good to be out and about again - back to church, hanging out with family and friends, running errands, etc. 

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30. December 2009 by Lindy.

We had a good Christmas despite some illness that ran through our house.  All the kids are healthy again and Dusty is enjoying his time off from work.  He’s been able to spend time with an old friend who came into town for the holidays.

I’m starting to get a skin reaction to the radiation.  It looks like a sunburn and hurts just a little bit.  Not enough to complain about.  My skin is a little numb from the surgery which I think is a blessing.  Otherwise I’m sure I would have more discomfort than what I do right now. 

The muscles on my right side are still tight, but I’m almost back to full motion thanks to the exercises from physical therapy.

Aside from the fatigue, life is slowly returning to normal.  I have 20 more radiation treatments to go and then a six month reprieve until reconstructive surgery.  I look forward to the hiatus.     

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25. December 2009 by Lindy.

“For to us a child is born, to us a son is given, and the government will be on his shoulders. And he will be called Wonderful Counselor, Mighty God, Everlasting Father, Prince of Peace.” - Isaiah 9:6

Merry Christmas

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24. December 2009 by Lindy.

Merry Christmas Eve!  Christmas came quick this year.  We had a great time last weekend seeing my dad’s side of the family Friday night and my mom’s side of the family Saturday. 

Yesterday was a chaotic day.  Dusty and I started coming down with colds Monday night so neither of us felt good yesterday morning.  Brooklyn woke up with a fever and wasn’t feeling well so she was laying on the couch.  Dusty was drinking coffee and Samantha and I were sitting in the living room too (Max was still sleeping - it was 7 a.m.).  Without warning, Brooklyn vomitted all over the couch.  I must say that Dusty’s response time has improved greatly compared to a month ago.  Kudos Dusty!  While he was getting her to the bathroom I started cleaning up the couch and surrounding area.  In the chaos of the moment, Dusty didn’t pay attention to where he put his coffee.  Samantha decided that Dusty’s full cup of coffee looked pretty neat so she thought she would spill it all over the floor.  Not in one spot - that would make it easier to clean.  She made a drizzle pattern with big blotches on the carpet.  I’m still trying to get it out.  Fortunately she didn’t burn herself.  Does anyone have tips for getting coffee stains out of carpet?  I’ve tried the Bissell stain remover machine.  Hot Shot or Hot Spot (I can’t remember what it’s called).  I even went to GoodHousekeeping.com and used the Heloise Helpful tip of dish soap and vinegar mixed with water.  Not a helpful tip.  Nothing is getting it out.   

We were hoping Brooklyn would wake up today feeling great, but that wasn’t the case.  She’s a little better and will hopefully be back to her bubbly self tomorrow.  We have two Christmas parties tomorrow.  We missed Thanksgiving with the VerBeek’s because the kids were sick.  We aren’t going to miss Christmas too.        

Radiation is going well.  Aside from being extremely tired and fighting a cold/flu bug, I haven’t had any other side effects (no skin reaction!).  They did warn me that I’m very susceptible to catching illnesses right now so I should be more diligent with the hand sanitizer. 

Max and Samantha both have coughs and runny noses.  Max is getting two molars.  Other than that, they’re doing great. 

I wish you all a very Merry Christmas.  As Brooklyn likes to say - Happy Birthday Jesus! 

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15. December 2009 by Lindy.

Today was my fourth round of radiation and it’s going well.  I haven’t had a skin reaction yet (that shows up in a few more days) and I’m tired. 

My emotion for radiation is anger.  I find myself getting very angry.  I’m laying on a table in the middle of a big room completely exposed with my feet banded together, my arms in stirrups above my head and a machine going around me zapping my insides.  I’m not sure where the anger comes in, but that’s how I feel when I’m laying there for my five minute zap.  Maybe it’s because I’m cancer free and yet this is another treatment with more side effects to deal with.  All I know is that it’s not self pity.  It’s anger.  The pity comes later when I’m so tired that changing another diaper feels like climbing a mountain. 

The only lasting side effect I have from chemo is forgetfulness. 

The lasting side effect from surgery is loss of motion in my right arm, but that’s working out with physical therapy which I go to once a week. 

On a positive note we went to Haven’s Christmas Program Sunday night and it was awesome.   All the kids did a great job, but we’re especially proud of Brooklyn.  I will have to get Dusty to post a video from last year’s program compared to this year’s program.  Last year she refused to sing.  She would make eye contact with us in the audience, cross her arms and whip her head to the side with her chin up as a non verbal sign that we can’t make her sing.  This year we used threats and guilt to make her sing.  Dusty threatened no Christmas presents (okay I thought that was extreme) and I said she is singing for Jesus because we’re celebrating his birthday and he wants to see and hear her sing.  She performed like a Broadway star.  Motions…singing…it was beautiful. 

The other good news is that I can lift Max and Samantha again.  They have started to take some steps by themselves without holding on to anything.  They’ll be walking in no time.  It will be a Christmas miracle for Samantha.  Especially when I look back to last year and her being able to walk was at the bottom of our list of worries for her. 

I can’t believe it’s going to be Christmas next week.  I cheated this year and bought Christmas tree cookies from Meijer.  The energy I do have I want to spend with my kids, so if you’re a recipient of one of those cookies I apologize. :)

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10. December 2009 by Lindy.

I made it through my marathon day of appointments yesterday. 

First stop of the day was Dr. Hoberman who is happy with my healing. 

Second stop was the Radiation Center.  The “dry run” went well.  The only bummer is that I’m having radiation with bolus every other day.  The bolus is something that looks like a large gel pack that they place on my chest while I’m getting radiated.  It allows a higher dose of radiation to the area.  They want to do that because the tumor was so close to my chest wall and that is where the greatest chance of recurrence is.  The downside of the bolus is that it increases the severity of skin reaction.  I’m praying for minimal side effects.  

My last stop of the day was Dr. Gootjes and she is happy with my recovery as well. 

So all in all it was a good day.  I was thankful that we didn’t get a lot of snow so driving wasn’t treacherous.   

Speaking of treacherous driving, my first radiation treatment was today.  I made it there safely and on time.  Six and a half weeks to go.  The treatment is painless which is a big a relief.   

I am so tired.  So so so tired.  Time for a nap. 

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