I am doing much better today.  No nausea.  No pills.  No fluids today.  Just a blood draw.  I slept last night.  I’m so tired.  I can do tired.  I have twins.  Tired is nothing. 

I don’t have anything new to update you with.  Just going through the ins and outs of cancer and chemo.  Wishing I had a fast forward button so this could all be behind us. 

I have realized lately how this is affecting Brooklyn.  This is hard for adults to deal with so it’s gotta be tough for a 5-year-old.  She was crying the other day that she wants her mama back.  Having people in the house to help with Brooke, Max and Samantha is such a blessing, but it’s really different for her.  She said she wants me to take her to Captain Sundae, swimming, the park, make her lunch, and not other people.  Basic stuff.  I explained that I will someday soon and that right now I’m fighting cancer.  She asked if cancer was fighting me back and I said yes, cancer and I are in a fight right now, but I’m going to win.   Because I will.  I’m going to win. 

I caught her giggling at my bald head the other day.  I’m glad I can still make her laugh.  🙂 

It has been a ROUGH couple of days.  It started Saturday afternoon.  I was feeling really sick and not quite right.  Sunday I was feeling worse than what I’ve ever felt before.  I was nauseous, vomiting, my bones hurt, everything hurt everywhere, etc.  Jill drove me to Prime Care and sat with me while they pumped me full of fluids, but it didn’t make me feel better.  It was a bummer to go through all that and not improve.  We found out my white blood count was quite high, but no one knew exactly what that meant.  Jill turned into a pit bull (I say that lovingly) and started figuring things out as best she could.  She made phone calls, asked all the right questions, helped figure out if I should go home or move on to the ER.  We decided to pack up and go home. I’m so thankful for friends like Jill.  She was my rock yesterday. 

Last night was not fun.  I hardly slept which means that Dusty hardly slept.  Poor guy.  He’s a great husband though and went with me today to get fluids and help sort things out at the Cancer and Hematology Center.

Samantha is feeling much better and is more like herself.  She even started waving!  Too cute.  Neither Max or Samantha are crawling yet, but they will be soon.  Brooke enjoyed the day at the pool with some friends. 

I’m so thankful for all the help – Dusty, my parents, Alisha, our friends and family.  Honestly, I don’t know what we would do without them.  The thought scares me.   

Happy Fourth of July everyone!  I hope you’re enjoying the fourth with your friends and/or family and having a safe fun time. 

I am missing the fourth this year because I’m in the middle of a miserable weekend.  Full of nausea, discomfort, sleep, disconnectedness, etc.  I look forward to the Fourth next year though and celebrating it with our family.

Dusty and Brooklyn had a camp out in the yard last night.  It’s Brooklyn’s favorite thing to do in the summer with her dad.  They pitched the tent, put the babies to bed, made smores and went to the fireworks at Kollen’s Park.  I was in bed at 8 pm so I missed all of it, but they said they had a great time. 

Samantha is still sick so I’m quite worried about her.  She’s been throwing up and not herself.  We think it’s a side effect of the medicine she was on for her ear infection.  I hope it’s nothing serious.  We’re keeping an eye on it.   Please pray that she perk up and get better. 

The nausea is still quite intense for me and my back hurts from the shot.  I’m starting to understand and accept the cycle of chemo.  I’m learning to accept the horrible weeks full of aches, pains, nausea, discomfort and to enjoy the good week that follows.  Besides, only one more horrible round of A/C.  Then I start Taxol (sp?) which I hope is much better. 

Thank you for your prayers.  God is good and will see me through this. 

I saw Dr. VanderWoude (oncologist) this morning.  I’m happy and thankful to say the tumor is shrinking!  She was pleased with how much smaller it is today than the last two visits.  It makes suffering through chemo worth it.  I was hoping this meant I would only have one more round of A/C.  No luck.  She reminded me that the four rounds following A/C aren’t as bad.  She said in a month I will feel better than what I do now.  I can’t wait to rejoin society.  🙂

Speaking of chemo, I have another round tomorrow.  I hate what it does to me.  We have to laugh because in addition to making me sick, it makes me very confused.  I can’t remember conversations.  I can’t process the simplest things.  I feel so disconnected and foggy.  It’s very strange.

DISCLAIMER:  If I have a conversation with you between tomorrow and next Wednesday I may not remember what we talked about.  Please accept my apologies in advance.  🙂

Lately Brooklyn has been testing words to see if they’re “naughty words”.  Her latest words are hate and dumb.  I can tell if she’s about to test a word by how she approaches me.  Yesterday she came up to me, cocked her head to the side, scrunched her nose and said “mom?” (uh-oh naughty word is coming).  “I hate cancer.  It’s dumb.”  I laughed.  I hate it too.  Then I explained how hate is a strong word and dumb isn’t nice…blah…blah…blah

I meet with the radiation oncologist tomorrow, Dr. Edlund.  I think he’s going to tell me if I need radiation before surgery, after surgery or both.  I’ll let you know.

So my tumor is shrinking.  Chemo is working.  A week of misery is coming.  My strength and endurance come only from God.  There is no other explanation for how I’m getting through this. 

He is using you to help me too.  Thank you for your prayers and communication.  Please keep them coming because they keep me going. 

I am happy to report that my bone scan is clear!  Thank God!  This is another amazing answer to prayer.  Thank you for your faithfulness in praying for me and my family.  I am so relieved.  You are good and wonderful people.  We are so blessed to have you in our lives. 

Did I depress you after my last doom and gloom update?  Sorry about that.  Sometimes I just have to unleash.  Thank you for your comments and communication.  They made me feel so much better. 

I’m feeling better today.  I’m starting to realize that I have one bad week (right after chemo) followed by an okay week.  I’ll take what I can get ya know?  I had a good time hanging out with the Jill’s today.  Jill G hung out with me all day and took care of my kids.  Jill B cleaned my house and gave me a mini pedi.  Tammy and the kids brought some beautiful flowers and notes.  Thank God for great friends! 

Some of you were wondering if our new carpet got wet over the weekend.  It turns out the carpet didn’t come in Friday so it hasn’t been put down yet.  It’s a good thing because we did get a little wet. 

The bone scan and fluids went well on Monday.  I had some really nice techs at Holland Hospital who hung out with me during the scan.  🙂  The nurse at the cancer center was able to access my port on the first try.  Big relief.  I called for the results of the bone scan today, but I haven’t heard back yet.  I also got my labs drawn today and I’m assuming no news is good news.  

The kids are doing well.  Over the past three days Brooklyn learned how to swim and is brave enough to jump off the diving board (thanks Monica)!   She’s going to VBS at Community Reformed Church and having a ball with that.  Samantha is battling a double ear infection and Max is still our chill little dude.  

Thanks for checking in.  I’ll let you know the results of the bone scan as soon as I get it.  Have a great night! 

Happy belated Father’s Day!  It’s been a long weekend.  The medicine they gave me helps a little, but not a lot.  I constantly feel sick, nauseas, exhausted and I can see why people ditch chemo.  It is rough.  This is the hardest thing I’ve been through.  Not to brag, but I’ve been through a few things in my 32 years.  I’ll spare you the list, but believe me chemo and cancer top it all. 

I have my bone scan today to see if the cancer has spread to my bones.  I hope it hasn’t.  I also have IV fluids, anti nausea meds and steroids today.  I’m sick of being poked and prodded.  I dread them accessing my port for the fluids.  For some reason the surgeon couldn’t get it in the best position and the nurse has a hard time accessing it.  It hurts.  It’s bruised.  I don’t want them to touch it.  Please pray that she can get it on her first attempt. 

Thank you for everything.  Your prayers are being felt and I need them more than ever.  I’m so tired.  I’m so sick of this.  I don’t want to go through 6 more rounds of chemo.  I need a break. 

Did you hear the storm last night?  It kept me awake.  While I was tossing and turning I felt hair on my pillow.  I could pull clumps of my hair out.  That told me my hair was coming out today.  I knew in a few hours our kids would be waking up.  My sister-in-law Becky would be here at 8 a.m. to use her loving and caring arms for our kids.  My Uncle Ken is coming to lay carpet in the basement and my dad is coming to move out our washer and dryer.   So at 4 in the morning I decided to shave my head in the quiet and stillness of the house.  It’s done.  My hair is gone.  Not a single tear was shed over the loss of my hair.  It’s liberating.  I am now one of the millions who are follicly challenged.  It’s just hair.  It will grow back.  🙂

Yesterday’s IV fluid and steroids helped the nausea.  It didn’t take it away, but made it tolerable.  It was better than the last round of chemo.  This morning I’m not feeling so hot so I’m glad I go back today for more, fluids, anti-nausea and steroids.

Next week I have one more IV fluid, anti nausea and steroid.  A bone scan at Holland Hospital to check for cancer in my bones and a blood draw for my CBC’s.   

Thank you for your support.  The special gifts  and food dropped off for us and the kids are great!  The communication.  Everything.  We appreciate all of it.  You are truly the hands and feet of Christ.   

Today was my second round of chemo.  I met with Dr. VanderWoude first, had labs drawn and was given chemo (Adriamicin and Cytoxan). 

Many of you were wondering what stage my cancer is.  Dr. Vander Woude explained they can’t stage my cancer because they’re doing chemo before they remove the tumor.  Typically they do surgery to remove the tumor first, stage it, and then do chemo.  In my case, since the tumor is quite large, they’re doing chemo first to shrink the tumor before removing it.  It will help them do a better surgery. 

At today’s visit, Dr. VanderWoude thought the tumor was slightly smaller.  We were very happy about that.  

As for the nausea, we have a new plan.  I’m going in tomorrow for fluids, steriods and my Neulasta shot.  I’m going Friday for fluids, another anti-nausea drug and steroids.  On Monday I’ll go again for fluids, anti nausea and steriods.    She said the first four rounds of chemo are the worst.  The last four rounds shouldn’t be too bad.  So there’s a little hope.  I have two down and two more to go before the easier chemo happens.  Please see the “help wanted” page for drivers that may be needed (I’ll need one for tomorrow).  🙂

After meeting with Dr. VanderWoude it was time for chemo.  We were able to score a room with a bed.  Kendra, my awesome nurse, had trouble getting the needle in the port.  After a few attempts we had success. Right now I’m feeling very tired, a little nauseas and very foggy. Thank you for your prayers and communication.  I love getting the mail every day.  I know the day will come when I don’t receive cards or letters anymore so I’m enjoying it right now.  We are so blessed to have great friends and family to support us. Thank you to the wonderful people who took care of our kids today.  Brooke had a great time with Olivia.  As of Monday, Max and Samantha are now eight months old.   They had their first kiddie pool experience yesterday.  It was great!  They’re growing so fast! 

Thank you for your comments.  I still run to the computer to read them.  I just can’t help myself.  Oh and I still have my hair.  It feels strange, but it’s still there.  Have a great night!